It’s okay to be in moments of vulnerability, it’s simply part of our shared life experience.

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A fantastic group of people from around the world with a shared story of complexity and conquering life through adversely.

My Medical Musings

Medical Musings with Friends started in January 2017. I was resting one afternoon in my bedroom, contemplating the new year ahead & wondering what possible purpose my life could hold, as my body kept spectacularly attacking me from every angle.

I have a Rare Genetic Bone Disease with multiple bone breaks & ongoing surgeries, Rheumatoid Arthritis, Permanent Colostomy due to a bowel prolapse, Fibromyalgia, Sjogrens Syndrome, Trigeminal Neuralgia, an inflammatory nerve disease, Scoliosis & Severe Degenerative Disc Disease plus a few other issues. It can be slightly overwhelming when the list adds up.

I suddenly had an idea, a slightly crazy idea, that maybe if I set up a closed forum for people with chronic, complex & rare diseases it could be an extension of my blog. A place where a few people could gather to provide support & genuine understanding. A place where it was ok to “muse” about…

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Before continuing to read this article, I strongly encourage you to take a moment to read my previous writings to gain a stronger understanding of my life experiences to this point. I discussed the first time in my life where I was challenged by a chronic autoimmune disease, Ulceritive Colitis in 2003. I also have... Continue Reading →

There's one constant in our everyday lives. At the end of the day we end up in bed. Though that bed may vary depending on a given situation. Typically it will be our own bed, either shared with a partner or simply laying by ourselves. Other times it may be a couch, a chair, a... Continue Reading →

Holding Yourself Back?

You have to live life crazy silly, how else do you make memories?!?!

Good morning everyone,

Beautiful misty morning here in Melbourne. There’s something so magical about misty mornings, it reminds me of something you would see in a magical place like Harry Potter. We better grab our butterbeers and punch Malfoy in the face, the mist is setting for the day.

Anyway – something that always comes up in everyday is people’s concern for what others will think of them. Perhaps you want to look a certain way, share a new fact you learnt, discuss something that you are excited about or even say something funny along to what another person has said. We hold ourselves back because we aren’t sure how it will be received.

I mean, I have said multiple things in a day that people will just stare at me while thinking numerous comments in their mind that they won’t say because they’re probably not the nicest of things…

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Many years ago I was introduced to the concept of  "Self Grieving", through an article I read authored my a person whom had cancer. As I read through this article I began to see striking similarity to my own experiences. The premise of "Self Grieving" is simply taking time to grieve for aspects of your life you... Continue Reading →

I had many thoughts in my head for what I wanted to discuss in this weeks article. As happens for many, these thoughts disappeared as soon as I was able to sit down to actually formulate my thoughts into words. It may be easy to blame this on my disease or recent stresses of life.... Continue Reading →

We all undergo change, some mild and insignificant whereas others tend to be life altering. We know of common change such as the style of clothes we wear, a hairstyle, the type of music we listen to and so on. Many of us undergo change that others may not notice so quickly. Health tends to... Continue Reading →

When you breakdown life, your life, a picture will come into focus. A picture of a Rollercoaster. All human beings have moments of great height, followed by great lows. Some of the time you're moving very fast!! While other times you are moving slowly, anticipating what may come next.  I am not going to over... Continue Reading →

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