A fantastic group of people from around the world with a shared story of complexity and conquering life through adversely.
Medical Musings with Friends started in January 2017. I was resting one afternoon in my bedroom, contemplating the new year ahead & wondering what possible purpose my life could hold, as my body kept spectacularly attacking me from every angle.
I have a Rare Genetic Bone Disease with multiple bone breaks & ongoing surgeries, Rheumatoid Arthritis, Permanent Colostomy due to a bowel prolapse, Fibromyalgia, Sjogrens Syndrome, Trigeminal Neuralgia, an inflammatory nerve disease, Scoliosis & Severe Degenerative Disc Disease plus a few other issues. It can be slightly overwhelming when the list adds up.
I suddenly had an idea, a slightly crazy idea, that maybe if I set up a closed forum for people with chronic, complex & rare diseases it could be an extension of my blog. A place where a few people could gather to provide support & genuine understanding. A place where it was ok to “muse” about…
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